Archive by Author

Jane Hawking BBC Interview about The Theory of Everything

The Theory of Everything

Released on 1st January The Theory of Everything has become a sensation, winning both the Best Actor and Best Original Score awards at the Golden Globes and the interest around the film is just growing and growing. Back on January 3rd Jane Hawking appeared on BBC Radio 4’s Woman’s Hour discussing her life with Stephen, the time she spent as a carer, the aftermath of her marriage and even her thoughts on the film.

In previous posts since the film’s launch we’ve discussed the technical side of things, how Professor Hawking actually talks but here we’re looking at the more personal side of their lives, which has become critically acclaimed in cinemas around the country.

Life on a Precipice

In an interesting interview which gave Jane the chance to discuss her life with Stephen and her feelings about having her autobiography, Travelling to Infinity: The True Story Behind the Theory of Everything turned into a hugely important and hugely popular film.

Talking about the film Jane expressed how strange and mesmerising it was to see Felicity Jones playing her and even remarked how Stephen too was amazed by how fantastically Eddie Redmayne came across playing him, with some stills of the two next to each other almost identical.

The interview also delves more deeply into the life Jane had trying to cope with Stephen’s Motor Neuron Disease with very little knowledge of what the disease could do and a prognosis of two to three years before his final death. In reality things panned out very differently and Jane herself highlights how she wished she had asked more when she had the chance so she would have been able to ask for help, get the right provisions in place and start with the support needed from the beginning, with a better system in place for vetting the medical and health professionals who came into their lives.

Jane described her life, when things were deteriorating, as ‘on a precipice’ not knowing what would happen next or how they’d cope with it but it wasn’t without hope, and her strength of character comes through, despite the issues they faced as a family.

Moving Forward

Jane Hawking’s Autobiography

Both Stephen and Jane Hawking entered new relationships after theirs was over and Jane highlights how the film portrays her relationship with Jonathan Jones very well, showing respect for all parties involved and she talks eloquently about how they managed their feelings to ensure no one was initially hurt. The mentions of Stephen’s second wife Elaine are fleeting and it’s clear, Jane and Stephen have been able to maintain a more effective family relationship since his divorce from Elaine.

Their family connections ensure they are always tied together and this has allowed their relationship to remain strong even after all the tribulations, although it is now better described as a working or platonic relationship than what they had before.

The type surrounding the Hawking family at the moment is fascinating and gives us a closer look at one of the leading figures in modern physics and the more personal side of his life. Hearing things from Jane’s point of view is especially valuable as it gives another dimension to the story as a whole and lets us see how well the film has portrayed her autobiography in her opinion.

Transcript:

[Intro]

Interviewer:     But first, in 1963 two young undergraduates bumped into each other at a Cambridge party.

 

[Film Clip: 00:00:08 – 00:00:56]

[Start]

Stephen:          Hello.

Jane:               Hello

Stephen:          Science.

Jane:               Arts.

Stephen:          English.

Jane:               French and Spanish. What about you? What do you?

Stephen:          Cosmologist, I am a cosmologist.

Jane:               What’s that?

Stephen:          It’s a kind of religion for intelligent Atheists

Jane:               Intelligent atheists?

Stephen:          You are not religious are you?

Jane:               C of E. Church of England.

Stephen:          England. I suppose someone has to be.

Jane:               What do cosmologists worship them?

Stephen:          What do we worship?

Jane:               Mhm.

Stephen:          One single unifying equation that explains everything in the universe.

Jane:               Really?

Stephen:          Yes.

Jane:               What’s the equation?

Stephen:          That is the question. And a very good question. [Laugh] I am not quite sure yet, but I intend to find out.

 

[End]

 

Interviewer:     Well that was Eddie Redmayne and Felicity Jones imagining the first meeting of Stephen Hawking and Jane Wilde in the new film, The Theory of Everything. It tells a story of how Jane went on to marry the brilliant young astrophysicist knowing that he had motor neurone disease and had been given only three years to live. Together Professor Stephen Hawking and his wife Jane confound all possible expectations as the years turned into decades. And they had three children together before separating in 1990. Both went on to remarry. Stephen to Elaine Mason from who he has since divorced and Jane to a long standing friend Jonathan Hellyer Jones.

Well the film is a fascinating glimpse into their lives before and after the diagnosis and it’s based on Jane’s Autobiography Travelling to Infinity. Jane Hawking told me what it was like seeing her life on screen.

Jane:                Felicity’s performance was phenomenal. She came to dinner several times when they were filming in Cambridge and I got to know her quite well, but she studied me obviously while we were talking and we talked a lot. And, when I saw her on the screen I was flabbergasted because she captured my mannerisms, my movements, my patterns of speech. Even—

Interviewer:     I know when I see a snap shot of Eddie Redmayne and Felicity Jones in the wedding when you got married and an actual black and white shot of you and Stephen you almost do a double take don’t you?

Jane:                Yes. Stephen says that he’s seen photos of himself as young man and Eddie side by side and he has difficulty knowing which is which.

Interviewer:     And the decision to get married which was in 1965 when you were both very young seems to have been an extraordinary thing to do of your life because at that point he’d had his diagnosis of motor neurone disease and you knew that a battle lay ahead. But, you thought it was going to be quite a short battle didn’t you?

Jane:                When Stephen’s father told me that Stephen had two or three more years to live at most and I felt I could devote myself to him for those two or three years. I loved him, I wanted to marry him and I wanted to do my best for him to give him every opportunity. Also though I have to tell people that we were living under the Nuclear Cloud and it only took what would take only one spark to ignite a conflagration or a Nuclear war which was going to be the end of civilisation; the end of all of us.

Interviewer:     You also gave up a lot when you got married which again wasn’t unusual for women of your generation, you know, you were educated, you studied languages, you hoped for a career in the diplomatic service. You then dedicated your life to your husband and family. But, do you feel like you gave up more than other women, other friends?

Jane:                Well to look at it from one perspective I think ours was the last generation for whom a home and a family were the great aims in life. On the other hand my father insisted that I finish my degree in London. So, I did finish my first degree and then I looked around for what could I do and I realised very quickly that being a wife and a mother in Cambridge was a passport to nowhere. There was no respect for wives and mothers in the academic–

Interviewer:     Did you resent that?

Jane:                I thought I needed to do something about it. So I started work on a Ph.D. on medieval Spanish poetry which was a lovely thing to do but it was quite difficult to manage first of all Stephen and a Ph.D. it wasn’t so difficult because we were both working together, but then when the children came along when I was looking after or playing with the children I felt I should be doing my Ph.D. and when I was doing my Ph.D. I thought I should be looking after or playing with the children. So there was a constant tension there and because of all the other things I had to do looking after Stephen of course, looking over the household. It took me a very, very long time to finish it. I finished it actually just before Tim, my youngest son, was born.

Interviewer:     I mean you talk of the years of child care but you also talk of the “Stephen Care”. Now as a carer you sacrifice your own needs much of the time and it was endless caring. Did that take its toll? You described how you became a drudge in the book.

Jane:                Eventually. At first we were trying to be a normal family living a normal life. I was very young. I had bags of energy and I managed, I coped. Stephen did have help from his friends and colleagues I mustn’t forget them because when he went to the department of applied math’s during the day they looked after him there and they brought him home for lunch and they brought him home in the evening. It was really after fame and fortune took hold that I began to find things very difficult. I was not as strong as I used to be. I was very tired; in fact eventually I was just worn out.

Interviewer:     Because there were a lot of occasions where someone had to be with Stephen 24 hours. You’d sit up all night and you would do shifts wouldn’t you because you were worried about him?

Jane:                My darling mum came over from St. Albans and she would sit up with Stephen all night when I was exhausted and then one of his very special students Bernard Carr also came and helped out in the same way. Stephen hated being in hospital he didn’t want to go into hospital and when he had to go into hospital he wanted to get out as quickly as he could. And we didn’t have a nursing team at home in those days and it meant that the family had to look after him at night with his dreadful, dreadful choking fits which was so, so scary.

Interviewer:     So you were living on a knife edge weren’t you between life and death?

Jane:                I described it as living on a precipice; the edge of a precipice. But, even so I said in the book that if you live on a precipice long enough you actually begin to put down roots and then a little tree grows up on the edge of the precipice.

Interviewer:     It sounds like Stephen is a sort of non-confrontational person because you never discussed his illness it was like a “no go” area wasn’t it?

Jane:                He would not talk about it. And I think that probably was my mistake because if when we were very young I’d insisted on talking about it, it might have been rather easier later.

Interviewer:     But going back to your relationship, your platonic relationship with this lovely widower Jonathan who comes into your life having cared for his terminally ill wife. And in fact slots in really well and he is quite happy to do all the caring duties for Stephen as well and in fact–

Jane:                He takes over and he helps with duties that when I was too exhausted to do myself.

Interviewer:     How did you manage with loving a man who you refused to have an affair with? In the film it comes across a profound sense of duty both of you.

Jane:                I felt I was committed to Stephen and Jonathan was committed as he says in the film not just to me but to the family as well. He was very lonely have been widowed so recently and he was not ready to have an affair. He was looking for some fulfilment in his life.

Interviewer:     Now your relationship with Stephen ended unhappily when he had a relationship with one of his nurses, Elaine Mason who he eventually married and has since now divorced. What was that period in your life like Jane? Did you feel utter betrayal?

Jane:                No, because I realised that Jonathan was in my life and I felt that Stephen had every right to have somebody in his life. But, I did want us to be able to continue as a family and I felt that Stephen needed me in his life because I knew all the routines. I cared for him.  I was committed to him. I felt that he needed my protection, but evidently that is not what he and his nurse wanted. So that was actually the end of the marriage.

Interviewer:     Has your relationship resolved since then?

Jane:                Between Stephen and me?

Interviewer:     Yes.

Jane:                Oh well we have three children and we have three grandchildren and I think that it’s very important for the family to have a sense of unity and to be able to do things together. To be able to go on holiday together, to be able to have meals on festive occasions together. And, to enjoy things like The Theory of Everything together.

Interviewer:     What was it like as the years kept passing by and not to put too fine of a point on it, Stephen was still alive?

Jane:                Life goes on doesn’t it? One year succeeds another and you concentrate on all the really wonderful things: your children, their success, the grandchildren and their success. And, in a sense Stephen and I had won the battle against motor neurone disease and that was a great success to.

Interviewer:     Would he ever have achieved what he did without you?

Jane:                Now that I cannot answer. Other people have suggested that, that might be the case, but who knows what could have happened.

Interviewer:     One point in the film Stephen says to you “you don’t know what’s coming.” If you had known would you have made the same decision to get married?

Jane:                I think if I had known I then would have known that I would be wanting to do things differently. I would want to be able to talk about the illness with him. I would want to be able to make better provisions. I would want to be much more careful about vetting people who came into the house as nurses and carers. So I would have wanted to have been in a strong position myself and I would have definitely wanted a lot more help.

 

[Outro]

Interviewer:     I  was talking to Jane Hawking and that film The Theory of Everything opened yesterday and it is very, very good indeed.

 

S’Up Spoon Kickstarter Campaign

S’Up Spoon Supporting Inclusive and Independent Dining

S’Up Spoon is a new and innovative assistive eating aid to help people with a movement disorder. Check out their Kickstarter campaign!

S'Up Spoon, Regular Spoon

Comparing S’Up Spoon to a regular spoon

Inclusive and design for all practices are at the heart of everything we do and we like to support products that offer the same. S’Up Spoon is an innovative new product which provides a safe and convenient utensil, specifically designed for people with cerebral palsy as well as anyone suffering from hand tremors, such as essential tremor. S’Up Spoon helps to ensure independence and dignity to many and their Kickstarter Campaign is currently gaining momentum and we want to help push them along their way!

Eat More, Chat More, Spill Less

With the above slogan opening the campaign, S’Up Spoon is introduced as a spoon for shaky hands and the campaign is looking to raise £33,000 and have provided the below valuable flowchart of exactly how their funding will be spent:

What is S’Up Spoon

S'up Spoon in Action

S’Up Spoon in Action

The video below explains S’up Spoon very well. The spoon was developed after the inventors met Grant who was frustrated by the limited nature of regular utensils as well as those specifically designed for assistive purposes. The spoon was designed to allow grant the freedom he needed to eat out with friends and from his fantastic feedback, the company went on to further hone the spoon for a wider user group.

The current S’Up Spoon has been developed to suit a wider audience including people with essential tremor as mentioned above as well as Parkinson’s disease. The spoon is on the verge of reaching market and there’s hope that the Kickstarter campaign will help launch them and ensure their product is available for a much wider audience. They’re currently about £20,000 away from their target and have 10 days to go. We’re hoping a final push can get them the funding they need and bring S’Up Spoon to market.

Assistive Utensils Market

The assistive utensils market is a growing area of interest for many inventors and designers. Products such as the Knork, Handsteady and other drinking and eating aids, provide assistance in some ways but not others and it’s clear S’Up Spoon feels a definite gap in the market and could even be used alongside other utensils and products.

We also reckon this is a good time to mention how valuable your Trabasack can be when out and about, providing a sturdy and stable surface to dine from, perhaps when you’re in a busy area or the table height isn’t quite right for dining comfortably.

S’Up Spoon Kickstarter

As with all Kickstarter campaigns, S’Up Spoon offer a range of incentives to their backers to get them on board and thank them for their kind pledges, the S’Up Spoon pledge incentives are as follows:

  • £2 or more: the feeling that you’ve supported a great cause
  • £15 or more: £3 off the estimate RRP for your S’Up Spoon and delivery by Christmas
  • £18 or more: A special S’Up Spoon supporters’ t-shirt (for those who don’t need the spoon but want to back the scheme)
  • £18 or more: A black/dark grey S’Up Spoon from the first production line for delivery in December 2014
  • £18 or more: A black/dark grey S’Up Spoon from the second production line for delivery in February 2015
  • £20 or more: A limited edition Kickstarter S’Up Spoon in green, never to be produced again.
  • £25 or more: Two black/dark grey S’Up Spoons for delivery between Jan-Feb 2015
  • £40 or more: Ultimate Package – both a black and special edition green spoon and a t-shirt for delivery in December 2014
  • £375 or more: A special edition silver anodised aluminium spoon, hand finished with a name etched onto the handle for delivery in February 2015
  • £2,500 or more: Lunch in Glasgow with a tour of the 4c Design office and a demonstration of the design processes used to develop the product. Whilst in Glasgow the backer will be able to get involved in ideas and planning for future developments of S’Up Spoon and will become a feature on the website alongside the rest of the team involves in the spoon’s design and development.

There are lots of fantastic incentives there to make that final push to back up S’Up Spoon and ensure it’s available to buy for anyone who wants it. Our main hope for the development of the product is that a stainless steel version is eventually created, allowing the S’Up Spoon to blend in more naturally in all dining environments.

Good luck to the 4c Design team and S’Up Spoon. We will keep this page updated with news as the project progresses.

 

How will Google Glass help Disabled People?

Google Glass Logo

Google Glass Logo

Google Glass is a game changing technology that we will look back to and wonder how we did without it, like we do with mobile phones and WiFi!

New developments design for mainstream usage are in fact becoming more inclusive and giving more options for people living with disabilities. Google Glass is one such piece of equipment.

What is Google Glass?

Google Glass is a wearable computer which comes with an optical head-mounted display which is working towards the full development of a ubiquitous computer. Google Glass is being developed as part of the larger Project Glass research and development project. It takes smartphone technology and makes it even more accessible. It displays information just like a smartphone in a hands free format which allows for communication with the internet through natural voice commands.

Google Glass

The Google Glass

Google Glass is fitted with a touchpad on its side and it allows users to control it by swiping thorough its interface on the screen. The interface is much like the standard timeline we’ve come to be familiar with and this swiping motion is the only physical action needed to operate the Glass.

Voice actions are the main way of controlling the device and activating the Glass is as simple as tilting the head upwards (to approximately 30° or a preferred angle that can be altered) or tap the touchpad and say ‘OK Glass.’ Once the Glass is activated only voice actions are required and you can access the range of different facilities offered by the product. Everything from ‘Send a message to Mum’ to ‘get directions to the nearest ATM’ can be found. Search results will be filtered and then read back to the user so they can choose the most fitting one.

Google use innovative bond conduction through a transducer in the product which renders the sound virtually inaudible to others around you, allowing for a private yet interactive computing experience.

The Google Glass headset can be simply connected to your smartphone and the display is a small information screen which hovers in front of one eye. Experts in the field are describing this as the first development in what will be the next big trend – wearable technology. Rather than slipping your smartphone into your pocket you could find you’re utilising glasses, watches and other wearable devices in the near future. Prospective analytics suggest that wearable tech has the potential to be big business with sales projections for the Glass reaching 9.6 million by the end of 2016.

Google Glass for Disability

For disabled people living Google Glass presents an even bigger opportunity. An opportunity to make their environment more accessible through information.  The Glass is much more than a new toy, it can be life affirming or even life changing. Technologists suggest that speech recognition is reaching new levels of precision. They’re actually working towards profoundly deaf people being able to see real-time transcripts of what friends are saying to them in the Glass’ prism. It really could revolutionise communication for many.

Equally the Glass could also be extremely useful for people with visual impairments – with suggestions that it may be possible to take walking directions from the Glass further opening up the world for them.

Below we’re looking at two of the early Google Glass adopters, both of whom are disabled and have had their stories well publicised. How the Glass has helped their lives is truly inspirational and is a positive example of how they can be instrumental for other people living with disabilities in the future.

Tammie Lou Van Sant

Tammie Lou Van Sant -Google Glass User

Tammie Lou Van Sant -Google Glass User

Tammie Lou Van Sant was a keen photographer before a car accident left her living with permanent paralysis. The Google Glass headset has given Van Sant the chance to point and shoot again as she can simply give voice commands. It has allowed her to once again enjoy one of her favourite past times as well as its other functionalities being highly useful such as answering her own phone calls, replying to texts and making small, solo trips out thanks to Google Maps.

Alex Blaszczuk

Alex Blaszczuk is another individual living with permanent paralysis. She submitted her story to the #ifihadaglass competition and was awarded her glass this way. She highlighted how the glass would help her to ‘thrive with physical limitations’. On receiving her Glass she was able to find a new form of self-expression and the video below shows exactly how much of a positive impact it has had upon her life.

Getting Google Glass

Google Glass doesn’t have an official launch date although recent queries to Google on  November 8th suggest it may be out by early 2014. There are no official announcements now so rather than thinking about when you’ll get your own it may be worth beginning to save up!

Google Glass has the potential to revolutionise the lives of millions of disabled people. Some may be able to recapture hobbies and interests that they remember before the effects of an accidents whilst others may enjoy completely new experiences, that they have never had the opportunity to participate in.

Google Glass for Disability Updates

We intend to update this post with people’s personal experiences and applications of the Glass as they develop. Please leave a comment if you have something for us to add.