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Purple Day 2013

Logo for Purple Day - illustration of a purple and green globe, with a green ribbon wrapped around it

Purple Day was founded in 2008, and is celebrated each year on March 26th

International Purple Day: Raising awareness of epilepsy

Purple Day is a worldwide event dedicated to raising awareness about epilepsy. Since Canadian Cassidy Megan created Purple Day in 2008, March 26th has seen people from across the globe join together for the cause.

Supporting Purple Day can be as simple as wearing an item of purple clothing. However many organise events to not only raise money for epilepsy charities, but to give people a chance to discuss epilepsy and meet others with the condition.

600,000 UK people living with epilepsy

Purple Day offers fantastic support for those who suffer from epilepsy as well as their families and friends. There are currently over 600,000 people in the UK who are living with epilepsy. Yet despite these numbers the condition is still often misunderstood by the public. 1 in 10 people will have a seizure  at some time in their lives.

Epilepsy is a condition that is characterised by seizures. A seizure is caused by a disturbance of electrical activity in the brain. This can then can manifest itself physically

Image of Cassidy Megan - Puple Day founder - young girl with freckles and dark wavy hair

Cassidy Megan – founded Purple Day to raise awareness and dispel the myths surrounding epilepsy

in a number of ways. Seizures can be mild or severe. A mild seizure can cause brief loss of consciousness and loss of muscle tone. However more severe seizures  can leave the sufferer totally unconsciousness and their body stiff.

Do and Don’ts for Seizures

If you are with someone and they are having a seizure that causes jerky body movements (know as a  tonic-clonic seizure ) you should do the following:

  • move them from anything that could cause them injury, such as a hot stove or away from traffic
  • note the time of that the seizure began, this can be important for medical treatment later. Try and time the seizure.
  • rest their head on clothing or a cushion if they are on the floor
  • help them to breathe by loosening ties, scarfs or other tight clothing around their necks
  • when the convulsions begin to stop, put them in the recovery position by turning them on their side, again keeping their airway open
  • reassure them and talk to them gently. Having a seizure causes embarrassment and anxiety. People are often confused when they come round. Stay with them.

 

Don’t put your fingers or anything else in the person’s mouth, they will not ‘swallow their tongue’ although they may bite it but it will heal and not cause lasting damage. Putting anything into the persons mouth could be dangerous or cause them harm.

When should I call an ambulance?

 

People with epilepsy may have seizures quite frequently and do not need to go to the hospital each time. Most seizures last less than 5 minutes. The person will usually be able to let you know if they require an ambulance or not. People with epilepsy may have a mediband, sos bracelet or necklace or carry an emergency card to let people know what to do.

You should call an ambulance by dialing 999,  if:

  • you know that the person has never had a seizure before
  • the seizure goes on for more than 5 minutes
  • seizures occur in a series, and they appear to stop, but then begin again
  • the person does not regain consciousness or is having difficulty breathing

Dravet Syndrome

 

Although epilepsy is relatively common in the UK, there are rarer epileptic conditions. My son has Dravet Syndrome which is a rare and life-threatening form of epilepsy that is diagnosed in children. Dravet Syndrome affects around 1 in 30,000 children in the UK. Whilst this is rare, they are around 200 families on our UK Dravet Facebook group.

 

Many children who are diagnosed with Dravet Syndrome develop normally until they have their first seizure around 3 to 6 months old. After the epilepsy begins children will gradually lose the developmental skills they previously had and find it hard to progress and learn. The developmental issues that occur with Dravet Syndrome can cause delays in speech and language, motor skills and the functioning of the nervous system.

Whether it is rarer forms of epilepsy such as Dravet Syndrome, or common forms – the effect of the symptoms strongly impact upon the quality of life of those that have epilepsy. That is why global awareness raising events like Purple Day are so important in raising funds and over coming the stigma that can come with the condition.

The XL Challenge

 

A fun way to support Dravet Syndrome charities and epilepsy research this year is to follow David of thexlchallenge.com. David has so far completed challenges including a dip in the sea for New Years Day, fun runs, eating bugs in a bush tucker challenge, half marathons and Terror nights!

 

David is doing 40 challenges in his 40th year and raising lots of money and awareness of Dravet Syndrome and epilepsy along the way.

dravet syndrome fundraising

David after a charity run in Cypress

He still has many unusual tasks to complete this year, follow him on twitter, check out his page and sponsor him!

 

Getting Involved in Purple Day 2013

Photograph of two pairs of purple Greeper shoe laces, one in sealed in a packet and the other open and on display

A pair of fantastic Greeper Laces are on offer to anybody who mentions purple day on their blog and links back to us.

To celebrate Purple Day 2013, we are offering a 10 free pairs of purple Greeper Laces to our readers who are willing to share their thoughts on the event.
Perhaps you’re hosting a Purple Day party, or taking part in a sponsored event? Epilepsy Research UK offer a fundraising pack filled with ideas to raise awareness and bring support to those with epilepsy this Purple Day. From wearing purple to school or work, or even dying your hair purple – like Helen Webster of Salisbury.

 

 

 

Purple Day Laces Giveaway!

We’d love to hear your Purple Day stories or accounts of living with epilepsy. Or even a mention of Purple day on your blog to help raise epilepsy awareness. Simply write a short blog post (at least 200 words) and give Purple Day  a mention, leave a comment below. We will send you a free pair of  awesome ‘once applied always tied’ purple Greeper Laces. (offer limited to UK residents, 10 pairs to give away!) **Sorry Offer Now Closed**

Cool Crutches ideas, Stylish Canes and Glamorous Walking Sticks

Guest Post with some cool crutches ideas

from the excellent BlueBadgeStyle.com:

Trendy Mobility Aids: Sticks, Canes And Crutches For The Discerning Disabled

It can be really hard to find stylish mobility aids. It’s a real shame that so little attention is paid to making crutches and walking sticks that are a little bit more trendy. After all, these are pieces of equipment that people have to use all the time. They shouldn’t be stuck with something dull, clunky, noisy and grey.

With this in mind, we’ve compiled a list of some of the more trendy mobility aids that we have found:

 

Skoe Crutch Wraps

Image is a photograph showing the top-half of four medical crutches, lay flat on a surface in a fan shape, each one in a different Skoe WrapA quick and simple way to glam-up your current crutches is to purchase a stylish Skoe Wrap – created from quality fabrics and available in three styles, the Skoe Wrap instantly adds personality to traditional, grey crutches! The “Midnight Sparkle” wrap is crafted from black sequins to add a little glamour for evenings out. The Skoe “Go Wild” Wrap is made from a plush, furry tiger-print fabric that is soft to the touch, and finally the “Dark Demin” Skoe Wrap is something a little more relaxed and casual, for days out or the weekend.

 

Sabi Walking Sticks

Image shows an array of 6 metallic-handled canes, stood upright in various bright colours, on a white background.

Cool coloured canes

These canes look really cool! They’re beautifully designed and look really vibrant and stylish. They come in a variety of colours and are apparently built to last a lifetime. They weigh 12-14 ounces and can support up to 250 pounds.

They’re made from a high-strength bicycle-grade aluminium shaft with a hooked birch wood handle. The handle widens in the right places and has a build in rubber strip to make it more comfortable and practical to hold. The shape of the handle also means that the user holds it directly above the tip which means they have increased stability.

The classic Sabi Cane costs around £59 plus shipping costs. They come in three sizes depending on the height of the user.

 

Image shows a dark-coloured cane with stylish, gunmetal hooked handle on a darkened background

Luxe Premium Cane from Sabi

As well as their standard cane, Sabi have created the Tuxedo – an all black version of their walking cane due to popular demand for a more formal mobility aid. It comes in luxury packaging and the birch handle is stained to make it darker and richer. According to their website: “It is the criminally gorgeous and brooding hero. It is the reflection of a love affair.” This might be a slight overstatement but, whether you agree with that or not, you have to agree it does look very good.

The Luxe Premium cane costs around £79.

 

Image shows 4 brightly-coloured canes (yellow, blue, pink and green) with stylised-hooked handles, upright but at various angles, on a white background.

All the Sabi canes look fantastic!

The final form of Sabi cane is their sports cane which is ostensibly for taking out on hikes and walks. The design is largely the same but  with a matte finish rather than the brighter effect of the standard model.

It’s a fair bit lighter, weighing 10-11 oz. and has a reflective logo, for walking at night. The handle is foam rather than birch wood which makes it more suitable for providing a secure hold on long walks but also makes it a little cheaper (£37-£59 plus shipping). It’s not quite as stylish as the standard cane but it is perhaps a little more practical for some people.

Sabi Sport Cane – £39.99

All the Sabi canes look fantastic and are really creatively designed. It shows that you can do interesting things when designing walking sticks!

 

 

Arbin Crutches

Arbin Crutches are great because they are so compact. They’re retractable, so when you are using them they can put aside taking up very little space. It removes the usual problem of your crutches getting in the way and making a unattractive mess, when they aren’t being used. These crutch’s handles slide down from the cuff and up the bottom slides up from the foot of the crutch to the small size of only 67 centimetres. Once folded in it can also be stood up on the handle making it easier to reach as well as being less noticeable. It’s really practical and stylish too!

Arbin crutches also look good when they are at their full height. They’re sleek and cool and they come in bronze or grey. They’re available in the UK at Chic Aid Crutches costing £184 including postage, packaging and VAT.

Graphic showing height adjustable arbin crutches - text reads:

Height adjustable Arbin Crutches

Folding arbin crutch shown standing upright, discreetly available next to his chair, whilst a man enjoys a date!

Arbin Crutches fold discretely away

 

Stylish Folding Walking Stick by Blue Badge Company

Image is a photograph of a bronze-coloured walking stick with wooden handle, folded neatly and placed upright on a windowsill next to a set of car keys Blue Badge Company have created a collection of tasteful, stylish walking sticks that are super-compact and folding in design. Created from the highest quality aluminium and featuring a Canadian Maple Wood handle, these walking sticks are abundant in character and class.
Available in three stand-out, smart colours that will appeal to all – bronze, navy and purple.
They can be quickly and easily folded-down for storage, and the compact design means they are small enough to carry in your handbag or carry bag.
Image is a photograph of a folded walking stick inside a William Morris-inspired print, hanging against a sandstone wallAlso available by the Blue Badge Company is a range of bags in a range of attractive prints, designed for keeping your walking stick to-hand, or allowing you to hang the stick on wheelchairs or hooks using the handy D-ring. Also ideal for keeping your handbag clean of debris and dirt that might gather on the walking stick if you chose to store it in your bag.

 

 

 

Luxury Blue Badge protectors can also be purchased in prints to match your walking stick bag.

Image is a photograph of a William Morris-inspired blue badge protector in packaging, against a white background

 

Glam Sticks

If you like bling and want to make a bit of a statement with your mobility aids then Glam Sticks is the place to go. In 2011 they were named Mobility Product of the Year. They take no prisoners with their designs – covering the sticks in diamante and sparkles – making everything extravagant and shiny. Glam Sticks look to provide glitz and glamour to go along with your style. They’re particularly good fun for evenings out, providing a bit of glamour to go along with your outfit.

Glittery crutch

Glam Sticks Kaleidoscope Crutch

Kaleidescope Crutch – £57.99

Glam Sticks come in a variety of models and designs with varying prices. The amount you pay is essentially based on how ostentatious you want your stick to be or how much bling you want on your crutches. A fairly basic, but stylish, crutch costs just over £3o. At the top end you can get a Swarovski encrusted walking cane – the ultimate decadent walking stick – for £224.99.

Walking stick with Swarovski crystals embedded

Swarovski Walking Stick – £224.99

Jesse J at a

Jesse J at MTV awards

 

 

 

Glam Sticks have picked up something of a following amongst injured celebrities, adding to their reputation for providing glitz and glamour. For instance, when Jessie J broke her leg last year, she wore a pair of Glam Sticks to the MTV Awards, giving her the required bling to accompany her style. These aids are great for providing a bit of luxury and sparkle, especially for a night out.

 

 

 

Cool Crutches

Cool Crutches offer people a range of crutches with fun, patterned designs. They also have a washable, removable neoprene squidgy grip which moulds to left and right hands and makes walking a lot more comfortable. They are possibly not quite as light and sleek as some of the other crutches we’ve featured but they are fun, colourful and, well, cool!


Most of the crutches cost £47.50 (not including VAT or shipping) but for £67.50 you can create your own custom design for them.

Image shows 5 different crutches lay flat on a white surface, in various designs including polka dot, gold, pink and leopard print.

Polka Dots from Cool Crutches

 

Ellipse Crutches 

Image shows 4 crutches, upright on a white background, in colours of black, green, blue, yellow and red

Nice Colour Range – £34.99

This range offers a good range of block colours which liven up the crutches without becoming too garish. This might be preferable to people who don’t want to make quite as much of a statement, with their crutches, as someone who’d go for a Glam Stick, for instance, but who want to add a splash of colour to them.

You can chose from a variety of main and secondary colours to accompany the black handle. This is good because it means you can design your own crutches to be as bright as you want.

They’re available at Chic Crutches and cost £34.99 (plus VAT and shipping)

 

 

 

Mobilegs

Mobilegs have created an interesting new design of crutch, using a ‘saddle’ instead of a the normal cuff at the crutch’s top. This is supposed to improve mobility, flexibility and comfort for users. They say that since it is so radically different, from traditional crutches, it can’t even be called a crutch but has been named a ‘mobi’.

Mobilegs are intelligently designed to help the user and really are quite different. They look a lot better than many traditional crutches too – certainly a lot sleeker, slimmer and less drab than NHS crutches. It’s also possible to get a ‘mobiskin’ to cover the shaft with a more distinct design.

The problem (and it’s quite a big one) is that Mobilegs are currently not available in the UK. When we got in touch with them they told us that they are still a relatively small start up company so they can only cater to the US market. However, since there might be ways around this, especially if you buy them online, we thought they were worth including. They cost $129 plus the (possibly substantial) cost of postage and shipping. We will keep you up to date should there be any change regarding UK distribution. Hopefully there will be soon!

Mobilegs Crutch has a bend in it

The Mobilegs Crutch looks unique!

 

mobility aids

 

Intelligent Design

So that’s the end of our list of trendy mobility aids. We’ve had a variety of styles, designs and prices in there. From Sabi to Glam Sticks – hopefully there should be something for everyone in there!

If you know of any other trendy mobility aids on the market please get in touch with BlueBadgeStyle or leave a comment below

This post first appeared on BlueBadgeStyle.com

Once you have your cool crutch or glam walking stick you may also be interested in this neat gadget for holding sticks or crutches together. Check out this post on the Bridgit Crutch Holder

UPDATE : Strictly Judge shows off diamante encrusted crutches

BBC Strictly Come Dancing fans may have spotted judge Craig Revel Horwood with some glitzy crutches, apparently they are actually diamante encrusted.  He had major hip surgery and rehabilitation therapy at King Edward VII Hospital in London.

 

Crutches made cool: Craig dazzled with diamante encrusted crutch on Monday night's 'It Takes Two' with Zoe BallIce Cool Crutches: the diamante encrusted crutch showed off by Craig on ‘It Takes Two’ with Zoe Ball

 

Razzle Dazzle: Craig is attempting to transform the image of the humble crutch with his diamante number Craig is not the only person who wants to be seen with some stylish crutches. Copyright images : BBC

 

Craig Revel Gorgeous: The Strictly judge proudly showed off his new accessory on Sunday night's show

 

Plug Pullers for Disabled People – UnPluGZ

UnPluGZ – Plug Pullers for Disabled People

Image of the UnPlugZ LogoUnPluGZ are plug pullers which make removing electrical plugs much easier. They are a cost effective and affordable way of ensuring plugs are easy to remove. They are an easy plug pull aid option and are a great alternative to plastic plug handles.

They’re made of tough plastic which is long-lasting and they are a cost-effective and practical alternative to plastic plug tugs or handles. Once the UnPluGz pulling aid has been placed in position it can remain in place securely for the life time of the plug. However, if you do need to move it to another electrical plug you can do so with ease. These plug pullers can be added to any 13a plug in your home.

UK Plug Handles

Each pack of UnPluGZ contains 9 easy pull plug pulling aids. They are designed to be tough but flexible and durable, and are manufactured and designed in the UK.

UnPluGZ are a perfect solution for disabled people living with poor grip or ‘fine motor skill’ problems as they provide an end to tugging and struggling at plug sockets. They provide improved safety as appliances can be unplugged easily by older people, disabled people or anybody who has weakened grip, arthritis or poor hand function.

Image of three photographs showing the Unplugz around a UK plug, providing an easy-to-grip handle for removing plugs and labelling appliances

These UnPluGZ are for UK plugs only but they have do a version for European plugs in their range. This is great for travellers or anybody living in Europe who wants to use a plug removal aid.

High Quality Plug handles that loop over European Plugs.

The European UnPluGZ also require no specialist fitting or tools. Simply fit over the prongs of the plug leaving a strong loop to put your fingers through. They’re great for for European Citizens or UK ex-pats living in Spain or other parts of Europe who struggle with plug removal. The design is unobtrusive and smart without looking clinical. You can leave them on the plug when not it use. They are perfect for use as a plug tugging aid and can also be labelled so that the right European plug is removed.

This design will not fit UK 13A Plugs, as this model is for European Plugs only. They’re great value as you receive 6 per pack. They’re also light weight and easy to carry.  They’re a much more convenient option than plastic plug handles that have to be fitted with screwdrivers and are not suitable for travel.

Also known as a:
Strecker Griff
Fiche Poignee
Plug Handgrepen in Europe.

Amazon Review for a Plug Pulling Aid

This is one of those really simple ideas that make such a huge difference. I had previously struggled to remove certain plugs from sockets – some have hardly anything to grip – but slip one of these tugs over the plug and it pulls straight out of the socket with no ‘wiggle-waggling’ at all – brilliant!!